I talked to Jennifer Ruhl at SEER about this. Below are her comments. We are going to adjust the edit accordingly.
With CS, the instructions were more clear. Code 987 was for when CS Lymph nodes were not coded to 000, in other words, you did not have a cN0 or pN0; however, it could also apply to cNX and pNX. Who knows how this was being used in CS.
It’s obvious that the codes need to be better defined. I know that NAACCR is putting a SSF Structure group (which I volunteered to be on), that is looking at developing the recommended SSF’s (for implementation in 2018) and also revising the existing SSF’s.
Since the instructions are not very clear at this time, I think code 000 and 987 should be allowed for a cN0 and pNX. Code 000 does state that clinical nodes are negative and not examined pathologically. As I stated above, code 987 could apply to pN1 and above or pNX.
I also agree with Jenna that there should be one edit. Could you just go ahead and allow both values for SSF4 and SSF5 for now for everyone? Once we get the instructions updated and better defined, then we can redo the edit. That would probably be for 2018. Tiffany does comment that this could result in a discrepancy in how a registry is coding; however, I don’t think this is going to be a large number of cases.
This issue can go to the new NAACCR group, although the first meeting (or 2 or 3) may be just discussing how to move forward and not really discussing details.
My recommendation: This is based on the fact that this SSF can only be assigned based on pathologic examination, although the pathologic assessment might not meet the criteria for pathologic N.
Code 000
Regional lymph nodes negative on routine hematoxylin and eosin (H and E), no immunohistochemistry (IHC)
OR unknown if tested for isolated tumor cells (ITCs) by IHC studies
Nodes clinically negative (cN0 or cNX), not examined pathologically (pNX)
Code 987
Not applicable: Regional lymph nodes assessed pathologically and not assigned pN0.